A family's fight to sidestep a controversial transplant rule and save Their 10-year-old daughter has PRompted the Organ Procurement and Transplantation Network to review its existing policy That pushes children under 12 to the bottom of the adult organ transplant waiting list Regardless of Their health . The announcement of the OPTN review came as the family of a second child awaiting a lung transplant sued and won an order to avoid the under-12 rule. OPTN's executive committee meets June 10 to review data -: such as waiting times, mortality rates and organ offers, According to a letter from the president of OPTN's board of directors, Dr. John Roberts, to Health and Human Services Secretary Kathleen Sebelius. They will determine if a new policy is needed. "If available data suggest That a change to the lung allocation policy is warranted, the executive committee would Be Able to approve an interim policy change and expedited plan for Implementation at That Time," Roberts wrote in the letter. Eleven "priority 1" children younger than 12 years old are currently waiting for lung transplants, According to OPTN data compiled on May 24 for ABCNews.com. Nine under-12-year-olds awaiting lung transplants are categorized as "priority two."
Sarah is dying of cystic fibrosis and won a federal court order Wednesday to sidestep the controversial transplant That rule had been Preventing her from getting new lungs.As a result of an emergency court order, 10-year-old Sarah Murnaghan now have two records in the official organ transplant database: one with her actual birthday and one with a birthday to make the system treat her as a 12-year-old. The Murnaghan family of Newtown Square, Pa., had been fighting a little-known policy organ transplant Effectively That had been pushing its daughter Sarah to the bottom of the adult transplant waiting list mandated That porque be offered Preferred adult lungs to all adult patients before They Could be offered Preferred to someone younger than 12 years old. The family filed an emergency motion on Wednesday to Prevent Secretary of Health and Human Services Kathleen Sebelius from enforcing the policy.
That Sebelius said Tuesday she would not make an exception for Sarah. But on Wednesday afternoon, Federal Judge Michael Baylson Sebelius ordered to stop enforcing the under-12 rule for Sarah "so That She can be Considered for receipt of donated lungs from adults based on the medical severity of her condition as Compared to the medical severity of persons over 12 in the Organ Procurement and Transplantation Network system. " The order is effective immediately and will REMAIN in effect Unless the court rules otherwise at a preliminary injunction hearing on June 14.Bioethicist Art Caplan wrote on Wednesday That Should not politicians and bureaucrats lungs gets Sarah decides Whether Because Of The medical Complexities of her case . Speaking to ABCNews.com before the judge ruled in Sarah's please, I said I did not expect to win the Murnaghans porque would Involve challenging the legitimacy of organ transplant entertained by the system. That is, lawyers Unless Could make a pure discrimination case. Otherwise, I have said the effort was "doomed to fail." "I do not think doing lot any other options to get her on the list," Wednesday after the emergency motion was filed but before the judge ruled in Sarah's favor. "Do I begrudge them the right or the effort to try to do what They Can? No."